Sponsored by Shanghai Rare Disease Prevention Foundation, Rare Disease Specialist branch of Shanghai Medical Association, Shanghai Red Cross Society, Shanghai Children's Foundation, Shanghai Children's Health Foundation and Shanghai Soong Ching Ling Foundation, organized by Shanghai Children's Medical Center affiliated to School of Medicine, Shanghai Jiaotong University, 2017 Shanghai International Rare Disease Day promotion campaign and monograph "Cure of Rare Diseases” release for the first time ceremony was held at Shanghai Children’s Medical Center on the morning of February 25, 2017. Shanghai Rare Disease Prevention Foundation’s founder, former vice mayor of Shanghai and Shanghai Soong Ching Ling Foundation’s vice chairman Xie Lijuan and the Shanghai Children's Foundation chairman, former vice mayor of Shanghai Yang Dinghua jointly unveiled monograph" Cure of Rare Diseases" release for the first time.
"Cure of Rare Diseases", a first monograph in China mainly on clinical practice oriented, not only provides clinical examples for the clinical medical staff, but also helps to promote the masses awareness of rare diseases. It will play a positive role in promoting the development of the prevention and treatment of rare diseases in Shanghai.
The Shanghai Soong Ching Ling Foundation provided 420,000 yuan of research funding for the project.